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Thursday, December 12, 2024

Caregiver Stress

woman in field dealing with caregiver stress

 

Guided Meditations:
Relaxation for Caregivers
Relaxation for Caregivers - sleep version

Recommended by The Guided Meditation Site

When you take on the role of caregiver, you are signing up for potential additional stress in your life.

Even if you religiously follow the standard rules - get enough sleep, eat a healthy diet, get regular exercise, take time for yourself - there will still be times when your situation seems overwhelming. Sometimes you can't change the circumstances. But often you can change how you feel about them.

It's helpful to prepare for those tough times by having a plan. Is there someone you can call when you really need a break? Will things fall apart if you close the door and walk away for five or ten minutes? Sometimes we dig our own traps by imagining that we are irreplaceable – but it's much healthier, and more realistic, to assume that others can share our load. A break, even a very short one, can help reset our mood and provide a reality check.

Caregiver Stress Signs and Symptoms

Not all of these symptoms below have to be present to be concerned about the potential for burnout. Some overlap with symptoms of more serious issues like depression.*
*If you feel you may be experiencing a clinical (medical) depression, download this screening quiz and seek further medical assistance from a doctor.

  • Loss of interest in socializing or hobbies that once used to bring pleasure
  • Sleep disturbances, insomnia, or sleeping too much
  • Feeling disinterest about, or even hostile or angry with, the family member you are caring for
  • Feeling sad or irritable
  • A significant change in appetite and body weight
  • An increase in a bad habit like smoking more, online gambling, driving recklessly, or excessive shopping
  • Mood swings that can include periods of intense anger, sadness, excessive crying, or snapping at others
  • In extreme burnout, physical violence toward a loved one
  • New or increased physical symptoms like rashes, increased allergic reactions, headaches, or other disorders which are made worse by stress

 

Causes of Caregiver Stress

The causes of burnout vary from situation to situation and person to person. Here are the top 8 issues that lead to caregiver burnout:

  1. Continuous Strain: Caregivers often do too much in one day, have trouble finding breaks or time for themselves, and have physical and emotional tasks that are simply exhausting. The “constant-ness” of caregiving can leave a person unable to take care of his or her own basic needs.
  2. Lack of Control: Often caregivers lack the ability to fully control their situation – yet feel fully responsible for managing it. For instance, insurance companies, doctors, and the caregiver’s siblings or other family members often have more say in what is happening even though it is the caregiver who will carry out the actual tasks.
  3. Grieving: Ongoing grieving over losing the relationship a person once had with someone can take a hard toll on someone’s emotional health. This is often even more difficult for spouses or those caring for someone with dementia. Having to experience all the gradual losses can take a toll.
  4. Conflicting needs: Not only is there a daily struggle over meeting one’s own needs versus meeting someone else’s, there is also family struggle over decisions that have to be made. Any family conflicts or personality clashes that were contained from the past often come out in full force when a parent becomes ill.
  5. Isolation and lonliness: Often the role of caregiving is a very isolating experience. If a loved one has mobility issues and cannot be left alone, this can seriously limit contact with other people. Sometimes the role of caregiving also interferes with the caregiver’s other relationships to such an extent that other relationships become strained or distant.
  6. The loved one’s behaviors or needs: In the case of dementia or alzheimer’s disease, the caregiver may experience significant stress in dealing with the constant questions or other abnormal behavior associated with certain diseases. If a person needs significant physical care like lifting or constant physical attention, it can also become overwhelming for a person to find the stamina to keep going.
  7. Financial strain. Many caregivers also lack the resources needed to get breaks, find home care help, or purchase needed supplies, ideal food, or equipment.
  8. Lack of Appreciation: When caregivers work really hard to help a loved one and it goes unappreciated by the family and even sometimes the loved one, it can lead to a sense of futility or hopelessness. While most caregivers are not doing it to receive applause or praise, it is hard to do anything tiring and challenging without some encouragement.

See Also: 

Depression in Seniors

Getting a Better Life

Being Organized in Caregiving

Complications

Unchecked, Caregiver Burnout can lead to decreased health. Some of the consequences below lead to more stress and burnout, compounding the problems:

  1. Poor health. When stressed, people tend to eat carelessly and overeat. Caregivers who are pressed for time are unlikely to use what little time they have to exercise or sleep – even if they really need to. The tendency to not take good care of themselves leads to a reduced immune system (meaning more susceptible to colds, etc.) and prolonged stress can trigger other diseases like inflammation, cardiovascular problems, lower back pain, etc. If faced with a health concern or a cold, this can further create a sense that things are overwhelming and lead to more stress. Caregivers report having chronic conditions at nearly twice the rate of non-caregivers. Also, since caregiving is often a full-time job, the caregiver may not be employed elsewhere and may lack health insurance and/or the funds to obtain good medical care when needed.
  2. Persistent aches or pains. Headaches, cramps or digestive problems that do not ease even with treatment are the most typical issues. The cause is usually stress, back strain from lifting, and a less than ideal diet.
  3. Elder abuse. While most caregivers never do anything to harm their loved ones, unfortunately, somewhere between 5-10% do. While stress and burnout do not cause violence toward others, they can lead to mood disorders like depression. Mood disorders are associated with an increased likelihood of becoming abusive.
  4. Earlier Nursing Home Care: Many caregivers site that the decision to place a person in a nursing facility came about primarily because of their own health – not the health of the person being cared for. If burnout occurs, a person becomes less capable of handling the tasks required of care. So, if a caregiver feels guilty for taking time for self-care, he or she should recognize that self-care is a vital part of caring for someone else as well
  5. Addiction: Prolonged stress can lead a person to increase negative habits or use substances like alcohol to relax. While stress does not cause addiction and only a small percentage of family caregivers are addicted, it is a possible complication of being in a stressful situation for long periods of time.
  6. Depression: While caregiving does not cause clinical depression, the strain of burnout can triger a depressive illness. Some people find it hard to admit depression because some still think it is like sadness and should be able to be overcome with a simple change of attitude. However, a true depression is a real illness and needs attention. Take our depression screening to see if this may be an issue for you. It is just a screening and not a diagnosis. If you feel you have symptoms of depression, you should consult a psychologist or physician who specializes in mood disorder. The symptoms of depression can include:
  • Persistent sad, anxious or "empty" feelings
  • Feelings of hopelessness and/or pessimism
  • Feelings of guilt, worthlessness and/or helplessness
  • Irritability, restlessness
  • Loss of interest in activities or hobbies once pleasurable, including sex
  • Fatigue and decreased energy
  • Difficulty concentrating, remembering details and making decisions
  • Insomnia, early–morning wakefulness, or excessive sleeping
  • Overeating, or appetite loss
  • Thoughts of suicide, suicide attempts

Tips for Coping with Stress

Of course the first step is to recognize the problem and then find ways to reduce the stress. Getting help from others is important.

Here are some ideas to get you started:

relaxed woman

  1. Find support right away. This can be from a relative, a doctor, a friend, a support group or social agency, or even an online forum like SageForum. The more varied the support, the better. Also, read tips on avoiding isolation.
  2. Take up mild exercise. Even a short 10 minute walk every day can reduce the physical symptoms associated with depression and anxiety symptoms of burnout. The important thing is to get started and keep doing it. Increase your level of activity only after you have established a good routine.
  3. Listen to your mother. She always wanted you to sleep well and eat well. This advice is still important. The physical toll of stress is high and you need the rest and nourishment to protect yourself.
  4. Find respite care. Try your local AAA and look into respite or adult day care. Even if you only use it temporarily, it can be a real life-saver. If your local AAA does not provide day time activities for seniors, they may be able to make appropriate referrals.
  5. Get organized. We offer tips and tools to help with this. Getting efficient and organized in and of itself can make your day-to-day routine less stressful.
  6. Simplify your surroundings. Spend some time organizing your home life and your caretaking routines. The less clutter and excess you have to deal with, the easier the job.
  7. Seek out counseling. If you are in a difficult caregiving situation or you are dealing with family issues that seem emotionally overwhelming, it can really help to have a confidential support person to share your problems with. Sometimes, if you talk to others in your family, it can make matters worse. Having an outside perspective can help you gain confidence and clarity. Most insurance covers mental health counseling and your AAA may be able to help you locate free non-profit sources of counseling in your area if you don’t have insurance.
  8. Accept and love yourself. This is easier said than done – but you are doing an honorable job and you need to really appreciate all that you do. Having a positive attitude about yourself and your role can significantly reduce the level of stress.
  9. Try some of these ideas too:
  • Yoga - find a local class or an instructional video to use at home
  • Limit caffiene and sugar as these can increase our feelings of stress
  • Journal - you do not need formal exercises or a fancy journal. Just a notebook to write out your thoughts at the end of each day can do wonders to release negativity and anxiety
  • Walking - daily walks are particularly restorative and helpful for releasing physical tension
  • Make a lunch date with a friend - seeing friends occassionally can help reduce stress. Often caregivers feel isolated in their role and "daily-ness" of the routine of caring for someone. Getting out once in a while can help us connect and feel less alone.
  • Skip TV and do something interesting. Starting a hobby or a project can be more satisfying and enjoyable in the long run. If you feel too tired to do something at night, it is a sign you need more sleep. The TV can keep us awake long past the point at which we should be going to sleep at night.

Guided Meditations

If you can spare 20 minutes or so, one very useful way to take a break is to listen to a relaxation audio. Here's one you can listen to on your computer or mobile.

The Sageminder Relaxation Tape, Wake-up Version is designed to help you relax, and to bring about a state of reduced tension and anxiety. The tape is also designed to wake you up gently at its conclusion, in case you fall asleep while listening.

If you have difficulty getting to sleep at night, or have time for a nap during the day, you may find the Sageminder Relaxation Tape, Sleep Version helpful. The basic content is the same, but without the wake-up section. (Please note, both tapes are intended for use only when you are able to sit or lie down comfortably, and not while operating a car of trying to perform other tasks.)

 

Guided Meditations for Relaxation:
Relaxation for Caregivers
Relaxation for Caregivers - sleep version

Recommended by The Guided Meditation Site

Caregiving

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